Winnipeg Free Press

Winnipeg Free Press (Newspaper) - August 31, 1978, Winnipeg, Manitoba Winnipeg free press August City news 2nd class mall registration number 0286 mint off it leaves you breathless answers to disease elusive weekend fund drive set by Manfred Jager thousands of Manitoban will be doing their share this weekend to raise Money for muscular dystrophy in addition to the Jerry Lewis Tele and the 21 hours of Graffiti music at Luigi motor Mcphil clips Street and notre Dame at 8 countless neighbourhood parties will be held in the next few but what is muscular dystrophy the real answers to muscular Dys trophy continue to elude i Vestiga most of whom work in the United states and usually diagnosed by the time the victim reaches the age of the Duchenne Type of muscular Nystro which affects Only Means the beginning of a losing Battle progressive deterioration of skeletal muscle our fight is to help kids walk As Long As says Ron Mon a Winnipeg orthopaedic surgeon who works with muscular dystrophy once we lose that the Battle is to keep the patient in a wheelchair As Long As and since scoliosis or spinal Defor mation is one of the numerous complications of muscular physicians and biomechanical engineers and technicians Are forever designing customized Brace devices for muscular dystrophy victims either still walking or already in its never a question of giving the patient Normal or even near Normal Monson the Only thing we can Hope for is to improve the Quality of their survive and to Deal with problems As they by and according to bracing starts by age with patients being confined to wheelchairs by the time they Are most victims of the Duchenne Type of muscular dystrophy about one per to boys Are afflicted at birth succumb to complications by the time they reach their late teens or Early approximately canadians Are affected by this most severe Type of muscular according to Allan a Winnipeg paediatrician who also treats victims of muscular there now Are about 50 such patients in the Cameron says genetic tests to detect women who carry the Duchenne Type of muscular dystrophy have been but Are still not accurate enough to permit surefire genetic Klaus associate professor of biochemistry at the University of has headed one of the bes known multiple sclerosis research teams on this continent since the late major breakthroughs in the treat ment of the disease and in finding ways of arresting or preventing de generative symptoms Are too far away to predict their occurrence in terms of Wrogeman what is being understood better As time goes by is the mechanism of muscular Wrogeman said there is research particularly from animal that Calcium concentrations outside the cell membrane of dystrophy victims is up to times greater than those of the inside of this alone could be a major Factor in the degeneration of muscle what medical science does not know is exactly what the discrepancy How it comes about and How it can be researchers also dont know what would happen if such Calcium concentrations outside cell membranes could be whether they would turn out to be the major Factor and what others might surface Wrogeman Heads an eight Man re search group which has been investigating multiple sclerosis since the late the Manitoba research group is working on two aspects of muscular dystrophy it wants to learn More about muscle cell How it occurs and How it might be prevented and it is As Are other groups of investigators in the Pri Mary cause or genetic defect which gives Rise to the disease in the first it is now believed that muscular dystrophy is a cell membrane disease and has to do with the Calcium Over loading of the outside of the cell Mem said if this theory is it might eventually be possible to treat the disease without even knowing its Pri Mary Joan provincial coordinator of the muscular dystrophy association of says last years Jerry Lewis telethon netted the National group donations totalling of this was raised by and while we have no Campaign goal for this we do Hope to raise this much again this coming weekend at the very All funds donated to the muscular research cause go to the associations National Headquarters in which then allocates Grants through its medical advisory the telethon starts it will be car ried on can div in Winnipeg from the hotel Sahara in Las vegas at 8 sunday Winnipeg time and ends the second Quarter of each hour during the Tele Ithon has been set aside for local appeals and photo by Paul Deloske Sidney Pankratz has written a Book about his muscular dystrophy victim leads Active life Sidney Pankratz cant remember a Day in his life when he did not suffer from some of the effects of muscular took a few years of journalism and creative communications courses at red River Community College and writes Short stories and a Book about his experience with muscular he now lives in a Garden City apartment Complex for severely handicapped there Are 75 suites in the and a staff of nurses and orderlies Are on duty to come to any of the suites and assist tenants with chores such As dressing in the preparing meals or taking a in that what we Call them Pankratz said during a Brief interview this All 1 have to do is Page them and be Here to help Pankratz was Able to walk until about 10 years ago and has been in a wheelchair since he says his ability to use his arms and hands has deteriorated slowly through the but he can still Type and prepare simple meals for i watch television a lot and i read a Pankratz its not very hard to get around in my so i visit with some of the other people around Here in the after Noons and Pankratz is interested in sports and goes to Blue bomber football games whenever there is room for wheel chair depression i get a Little discouraged at Pankratz but whats the use of that i just have to forget about it and keep going or i wont get Safeway talks slated Canada Safeway and the Union representing striking workers at its Lucerne milk Plant were to resume contract talks hopefully this will produce some thing but of course there is no Guaran Bernard president of the retail store employees local said Christophe said the talks were not arranged by a provincial conciliation the Union Leader said instead that he had asked for the bargaining session in an attempt to put an end to the lengthy dispute which started May originally about 30 workers went on strike after they were locked out of their jobs by Safeway following the rejection of a contract offer based on parity with the Dairy during the initial months of the strike lockout Safeway purchased milk from other about a month now Lucerne has been Back in business with five employees who crossed the picket line and new staff hired for the a Date has yet to be set for a court hearing of the unions claim that a cashier at one store was unjustly punished when she was sent Home for refusing to handle Lucerne the Union claims the cashier was exercising her rights under the hot goods clause of the Manitoba labor relations which gives Union work ers the right not to do anything to facilitate the operation of a strike bound the Union has just entered into a new contract with Safeway covering its More than store put Ting an end to a two month province wide Gas prices Rise the few Days of lower gasoline prices were Short lived As gasoline increased to cents a gallon 60 Days after the increase in the Price of a barrel of crude the 60 Days is the Lead time set by the Federal government for Oil companies to pass on the Price increase to con the Price had dropped three cents at the pump to cents with the 10cent Cut in Federal excise tax on gasoline announced seven Days ago by finance minister Jean before the Price was about cents per gallon at self serve pumps throughout the corporation manager for Imperial Oil in said Oil companies appeared before the Federal anti inflation Board and asked for operational increase ranging in the tenths of these were the increase brings gasoline prices in the City to what they were before the Federal giving Lyon credit for Garrison decision is ludicrous Green environment minister Brian ran soms claim that a letter by Premier Sterling Lyon to the United states con Gress concerning the Garrison dam project was useful in protecting Mani Tobas interests was dismissed As Ludi Crous wednesday by former nip environment minister Sidney in a had said the Canadian external affairs department believes Lyons letter to Senate presi Dent Walter Mondale and House of representatives speaker Thomas tip Oneill clearly played a role in persuading the Senate appropriations committee to insert a proviso in its report that funds for the project would not be used in ways which could affect Canadian Waters or invalidate previous Lyons letter pointed out that Manito Bas Lake Winnipeg fishery would be destroyed if water from the Missouri Basin were released into Rivers flowing into this to suggest a letter from Lyon to Congress had such an effect is so Ludi Crous As to be unworthy of Green calling the press release self congratulatory and the former nip Cabinet minister said even before the International joint commission report recommending million in changes to avoid effects on Manitoba Waters was released in 1977 the government had taken the position it engage in Tion which would violate the Boundary Waters in his Ransom said the Senate committee Resolution spelled out that construction should take place Only on that part of the Garrison project where the return flows Are to the Missouri River Manitoba will insist on adherence to that position in the upcoming consultations Between Canadian and United states Federal he while the senates recognition of the danger to Manitoba is there is also reason for concern because additional dollars Are being spent on the increasing the pressure for its Ransom the next stages of construction May bring Missouri water North into storage near the headwaters of Manitoba which will always pose a Ransom stadium liquor crackdown set Winnipeg police say they Are going to crack Down on fans who bring Beer and alcohol to the stadium for consumption at football the police departments vice squad began the crackdown at tuesday nights game by handing 17 people notices to appear in court on charges of having liquor in a place other than their staff inspector Al Webster of the vice division said wednesday police have been receiving quite a few complaints from fans who say they Are bothered by people drinking in the stands and acting some fans Are bringing alcohol with them to the while others retire to their cars at halftime for their he the vice division normally keeps an Eye on the but went out a Little stronger tuesday with about half a dozen plainclothes vice officers and a number of plainclothes men from other divisions in Webster these officers were in addition to the regular complement of police who Are assigned to each football he ramp gearing up for weekend photo by Gerry Cairns George of 476 marys is working on this 18foot fiberglas Camel commissioned by the town of for the Carberry he expects to have u finished in about two ramp say they will be conducting an extensive traffic Law enforcement and Accident prevention Campaign in Manitoba during the labor Day week a spokesman said wednesday the process will involve traffic spot checks checkpoints moving and stationary radar checks Roadside alcohol screen ing programs breath analysis patrols aircraft patrols and other All available Rural detachment and Highway patrol units have been rescheduled and will be on hand for the enforcement he the last time ramp conducted such a Campaign was during this years Vic Toria Day Long weekend in when vehicles were during that weekend there were 20 injuries and 54 cases of property damage As a result of traffic the spokes Man the Campaign is confined to the ramps Winnipeg which covers most of Southern extending East to the Ontario West to Between Portage and Carberry and North to 69 Kilometres 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