Winnipeg Free Press

Winnipeg Free Press (Newspaper) - June 23, 1997, Winnipeg, Manitoba Winnipeg free press local june 1997 John Douglas 6977230 features Jim Carr email a3 rare disease lures experts by Alexandra Paul medical reporter doctors from a prestigious Manhattan University Are in Winnipeg today to investigate an unusually High rate of a rare disorder among Manitoba the medical team from Columbia University neurological Institute believes genetics Are behind the High rates of dystonia among the Mennon the Gene idea is said the chairman of Winnipeg dystonia med ical research Katie Dycke said the typical reaction from doctors who once treated her was she was mentally not physically y doctors Here to study dystonia among mennonites for 28 Dycke was told she was schizophrenic by doctors who were baffled by the Peculiar movement Dis order that eventually forced her into a wheelchair in 1985 and still causes involuntary muscle i spent Many years getting psychiatric care when it was said now in Dycke was finally diagnosed with dystonia that she now believes began in childhood when her feet started to curl to have doctors Here from new York City sleuthing out the medical mystery confirms Dyckes suspicions that Dys Tonia May be linked to at genetic counsellor Deborah Raymond said people with dystonia have trouble getting the right diagnosis because the disease is and shows up in different in the people were told they were crazy or that they were imagining Raymond the team at Columbia has searched the world for pockets of the disorder and found it in different forms and linked to different genes in jews with an Eastern european heritage As Well As Amish mennonites in the United now the team is wondering if Mani Toba mennonites Are linked genetically to the Amish or if another Gene is behind Manitoba dystonia that the Canadian Raymond the team Seth Pullman and his colleague and wife Rachel Saunders Pullman and a clinic coordinator will spend today and Tomor Row at Concordia Hospital examining 70 mennonites 25 confirmed with dystonia and 45 of their relatives out of a population of among the the dystonia ratio is also High the team found 200 to 300 people out of two extended families with the weve advertised All Over the world looking for families with so we can look for and identify the genes and ultimately find a cause and develop better treatments for Ray mond the search for genes also doubles As a Way of informing the medical profession about the its important to get the word put to physicians who Are not specialists so they can become aware of what Dys Tonia is and that is does exist in this Raymond if people Are identified with it they should be sent to Dycke also invites All the doctors who misdiagnosed her to meet the new York medical team in i dont blame i dont want another person to go through what i went Dycke Jeff de free press about people attended yesterdays Gay Pride Gay Pride festival symbolizes struggle by Bud Robertson staff reporter Betty Schelske loved watch ing news of the flood on television but for a very different reason than most other i enjoyed hearing the word Dike every night on the said the Winnipeg lesbian As hundreds of Gay men x and women stood at the foot of the Manitoba legislature yesterday and roared their the Lith annual Gay Pride Parade and rally kicked off in a festive mood tempered with the knowledge that every Day is an Uphill Battle for accept last years Parade attracted 800 Par police estimated almost twice that number turned out for this years Parade and entertainment at memorial while some of the Parade participants stood out in their Garish dresses or tight leather pants and thigh High others in simple shirts and shorts sat quietly on the Steps and held hands with their partners As the speak ers took turns at the we must get really angry every time a member of our Community is a victim of said a Union whether its harass ment in the workplace or being beaten up or murdered on these Gay people must continually strive to be free of both in the workplace and in the she adding the Canadian labour con Gress is holding its first Ever Gay and lesbian conference this year to discuss same sex our goal Here must be not said Gay rights Are being recognized More through provincial and territorial said Carmen spokeswoman for Egale Equality for Gays and lesbians our Legal recognition is just around the said this is Paquette urged the crowd to adopt an my to try to change some of the 55 Federal from income tax to that still discriminate against Gay and lesbian the Battle May not yet be but it is gaining according to Parade organizer Brad province honour floodlighting troops thousands along Parade route Salute police by Bud Robertson staff reporter Andrea Sokal smiled and waved As the injured Soldier Rode past her in a Bright red he was trying to help said As Frank this years honorary led the red River exhibition Parade Down Portage Avenue yesterday a Soldier based in Edmon lost his left hand after coming into Contact with a live electrical wire while fighting the flood near Emerson earlier this accompanied by his wife Guay waved at the thousands of Well wishers along the Parade route As they clapped and cheered in the Parade was among a series of festivities yesterday in which Winni Eggers expressed their gratitude to the flood including the ramp and the coast before the a reception was held for the military at the vis count Gort where mayor Susan Thompson and other govern ment officials presented Keepsake certificates to representatives Garrett with Cousin Jolene Waves to Parade participants from the Navy and air All members of the military who came to Manitoba this Spring will receive a certificate at their Home a private group of Cit which drafted a lieutenant from the Navy to design the organized the presenta later the Manitoba government gave put special certificates of recognition to All regi ments of the military who came during the As Well As the ramp and the coast the presented by Premier Gary were Given at an afternoon ceremony and reception at the legislature where the Canadian forces massed pipe and drum band All Manitoban Are grateful for the hard enthusiasm and professionalism the members of the the coast guard and the ramp brought to their floodlight ing Filmon it is Well documented that without the Quick response of these proves Many Manitoban might have experienced very different results in their floodlighting Winni Eggers at the Parade seemed to i think the flood was a very important thing in Winnipeg his said Cindy connecting the floodlighting efforts of people like Guay with the festive Ness of the summer exhibition does a lot for Peoples flood injury to end career Soldier who lost Eye changing tire shuns weighs new Job by Catherine Mitchell staff reporter a s Winni Eggers flocked to fete the military floodlight x aers Dan rum Mery quietly slipped out of the 23yearold from who is with the Edmonton based 1 combat Engineer had come to the City to be fitted for a prosthetic right he lost the Eye and broke his suffering cuts to his in an Accident in Early May when he was last Here fighting the Rummery was invited to sit in the Parade staged yesterday along with fellow regiment member Frank who also was injured on duty during the but Rummery declined because his plane was leaving before the Rummery said yesterday evening from Edmonton that he has purposely shied from Media attention after the prefer ring to heal in quiet with the help of friends and but he does not believe he has much of a future left with the Mili there going to end up medically releasing with Only having one i cant do a full in not Able to go into the Field any As of next Rummery expects to be working Back in win transferred to another Mili tary unit Here in the and at the end of the he will be working with a local Engi Neering consulting firm that has offered him a despite Little publicity about his Rummery said people from Manitoba have been wonder Ful in recognizing the work he did and the Price he id just like to thank the people for recognizing what he i got a lot of letters and cards of sympathy from people that i didst i got a general feeling of thanks from the people of Rummery lost his Eye while changing a it makes me More he said of the you take things for granted and they can be mid season clearance this week Only mens designer suits regularly to All other suits regular to 25 off sport jackets Stys to 8 dress Slacks Reg casual Slacks Price All dress shirts 25 off i All sport shirts 8 Pricel All ties in each Ltd All other Pricel Vittorio Rossi clothiers 1730 Corydon at Centennial 4891001 open 9 to 6 weekdays saturdays to s All Fihaki Altria Tiosh t important notice for members of the Norway House Cree nation concerning the implementation of the Northern flood agreement in Norway House Cree nation signed an agreement in principle with Manitoba Manitoba and Canada to implement the Northern flood negotiations have been taking place since that time to reach a under this agreement Manitoba Manitoba and Canada agree to provide Money and various continuing arrangements for Norway House Cree this agreement will enable Norway House Cree nation to control and direct implementation of the Northern flood agreement for the Benefit of present and future Public meetings will be held for members at the following times and locations june 19 1997 Norway House multiplex july 3 1997 Winnipeg aboriginal Centre 181 Higgins july 1997 Norway House multiplex the nature and significance of the agreement will be explained at these members will be provided with information and Given the Opportunity to ask questions or discuss these meetings Are very As noway House members will be asked to vote for or against the agreement in a formal members can review or obtain copies of this agreement and updated information from the Norway House implementation office on Reserve or at the Norway House negotiations office at 780125 Garry Street in Winnipeg Between am and monday to the first will take place in Winnipeg on july at the aboriginal 181 Higgins Between the hours of am and pm and in Norway House on july at the multiplex Between the hours of am and the or second will take place on july in Norway House at the multiplex Between the hours of am and pm and in Winnipeg on july 1997 at the aboriginal 181 Higgins Between the hours of am and by authority of chief and Norway House Cree am pm am pm pm pm pm ;